They weren't full knee replacements, but in terms of pain and length of full recovery, they were similar to that. The surgeries that finally stopped the painful, unpredictable knee dislocations I'd had since early childhood, (I estimate a total of 40-50 between both knees, over my lifetime,) involved bone incisions, relocating tendons, and putting in screws. They left me with a nice six-inch scar running down each knee and onto my shins. First recovery involved two casts and a brace; morphine until they realized I wasn't taking it well, then torydol, then percoset, then Advil. Second recovery involved a very extensive brace and a cooling apparatus; torydol, percoset, Advil. Both recoveries involved about 8 weeks of not being able to bend my knee at all, then months of physical therapy to regain strength and motion. (And it wasn't entirely successful; I don't have a full range of motion in either of my knees anymore.)
Was it all worth it? Yes. First of all, they were successful- I've had only one partial dislocation, and no full ones, since the surgeries. But also, I had never felt closer to God than I did during those times when I was in my weakest and in the most pain, weird as that may sound. I also had to learn to depend on my family in ways I never had to before. With my physical capabilities curtailed, I realized just how lucky I was even before the surgeries. And I'm even luckier now- now that I've had only one partial dislocation and no full dislocations in the past 3 years, now that I can strap on some thick ankle braces, (since those joints are still pretty susceptible,) and go JOGGING without the constant fear of a knee dislocation. I'll never be a champion sprinter- but compared to the life I lived for a long time, being able to jog is a huge deal.
I don't understand the timing of this, but just when the biggest physical challenge of my life- my knees- was being taken care of, my eyesight started to decrease- significantly, and at this point permanently. My fragile corneas had never been a problem while we spent most of my life worrying about my fragile ligaments. Then when I was 15 (a year before the first knee surgery) my right cornea nearly ruptured but didn't- I didn't completely lose my sight in that eye, but the scar tissue that saved me from a corneal rupture has instead put a huge blur in the middle of my right eye's field of vision. My right eye tends to test, (and it's been tested a lot,) somewhere between 20/100 and 20/200. 20/200 is legally blind. You know the big "E" at the top of the vision test? Guess what 20/200 people can't see!
My left eye held up for awhile so I barely noticed the right eye issue. But during and shortly after the knee surgeries, my left eye started to become trickier to get up to 20/40-20/20 range with prescriptions. The left cornea is as-of-yet without permanent damage, but thin, weak and ever-changing. Now my left eye hovers between 20/40 and 20/60, and it's recommended that I get my glasses prescription updated as frequently as every 6 months, or else I'll be seeing even less. It's a weird situation. Maybe the strain of being practically my "only eye" is just plain hard on my left eye- in addition to decreased visual capabilities in my left eye, I've had ocular migraines in the past year or so, indicating that I'm straining myself to try and see better than I really can.
So now I can't read small print, (I stubbornly strain to read a lot of normal-sized print,) I can't *read the board in class*, and as it stands now I'll probably never drive. (That last one's the clincher because it basically says I can never live completely independently.) I cannot pick people out of a crowd or tell you in detail what's going on at the other end of the room; I lived the first 5 years of my life, formative years, without glasses or contacts, and this put me in a sort of psychological bubble where I hyperfocus on things and people closer to me. Even when my vision was relatively normal for that 10 years between age 5 and 15, I remained somewhat in that bubble... Now, my vision is back to being more suitable for the bubble, once again.
I've considered becoming a classroom teacher. Do you know how weird that seems sometimes when I consider the fact that I'll probably not notice cheating or note-passing unless it's going on within 10 feet of me? (And it's never going on within 10 feet of the teacher.) But I've also considered being an interpreter, as you all will remember recently. That would be auditory work, demanding much of my high language aptitude and little of my low vision, work where details are important- but only within a close range, that little psychological bubble of mine.
Mom says God gives us weaknesses so we can be learned to be blessed by the strengths of others. Moira says God has a plan for my life that will make me happy and will not demand more of me than what I can do. (Moira also says I would be a great interpreter, if that's what I decide to do.) I have Ehlers-Danlos Syndrome, and compared to some with the condition, I'm doing great. Although I do have days where I wish I were "normal", if there is such a thing (I kinda' doubt it; having physical problems gives you the sensitivity and the conversation starter to find out what's wrong with other people, and basically everyone's got something wrong with 'em, so what is normal?) Anyway... I'm starting to sound like a martyr (which I heck no, I am not,) and I'm gonna' be late for Janet and Mary's Movie Nite. So, that is all... I'm sure that was more than all of you wanted to hear. I just laugh when featured questions get me started on a REALLY long story...
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